The most miserable thing knows medicines perfectly well and saves someone's life but can't buy in the world
8 -year-old excellent and excellent, the door of a school, is claiming that lets mother buy the root fried ham intestines. Greasy ham intestines, he eats with relish.
At this moment, but excellent excellent mother seizes the hair directly agitatedly. The ones that suffered from hemophilia are too excellent and excellent to know, in order to find him saving someone's life medicine, this morning, mother has already run in two hospitals and two pharmacies, is all told: There are no medicines! This medicine that saves someone's life lets " Eight factors of blood coagulation " . Not in time it inject blood coagulation eight factor, hemophilia patient can life like normal people.
In 2007, are called " help medicine " by 100,000 Chinese hemophilia patients Blood coagulation eight factor,absolutely goods, and whether it is nationwide. After two years, this state does not have any that is relieved. Before National Day, the excellent excellent mother heard a news again, eight factors of blood coagulation rose in price. But even rise in price, the excellent excellent mother can not buy either.
This disease is very terrible
Grain of rice big wound can shed half a bowl of blood
Big eyes, double-fold eyelids, long eyelashes, laugh at two little dimples - -Will it be noon October 10, the intersection of Zhengzhou and one the intersection of primary school and gate, wait for mother meet he while being excellent while being excellent while being 8 -year-old. The little child looks very sturdy, the round belt burns the round buttocks is sprained back and forth.
But " healthy " Just false appearance, while bleeding, the lively stick is excellent and like a new person. Even if only feel a bit that aches, he will be frightened so that the face changes color, oh wails. Because he knows, will welcome pain different to stand by oneself subsequently, Papa and Mama should be his burnt heart.
It is a severe hemophilia patient to be excellent and excellent. Hemophilia is a kind of hereditary blood coagulation and factor deficiency disease, the patient is men, once they bleed and bleed incessantly, because they lack a kind of blood coagulation factor in the body, commonly called as eight factors. The bleeding position concentrates on the joint, muscle and viscera. Among them, it causes skeleton amyotrophy out of shape that the joint bleeds repeatedly, but viscera and head bleed will jeopardize the life.
Excellent and excellent shortly after being born in, Ms Zhang found he was out of the common - -Trim the nails for him, the big wound of a grain of rice, can flow out half a bowl of blood. Woke up from a sleep sometimes, child's knee was so swollen as to just as deducted a small bowl suddenly.
Later on know she,that is because of at knees invisibles excellents excellent,ooze by blood at a each, "inside oozes the blood and bleeds more terribly than the wound, the child is so painful that the foot can not all suffer the ground. "
If input eight factors of blood coagulation in time, the blood will be stopped, the patient will just live like normal people.
" whether these more and more like a extravagant hope " ,Ms Zhang say, bleed, torment often, excellent stick at the one grade, add up for less than one month in time of school, second grade start a new term one more than month just, have three at home more than week while being excellent while being excellent very. Nowadays, the excellent and excellent right leg can't already be bent freely.
Very much difficult to buy medicine this
Did not reach a inferior goods until domestic two or three months
At 9:30 on the the morning of the 10th, Ms Zhang gets to and lies in Zhengzhou province pharmaceuticals of the bridge once newly. But the person in charge of the pharmacy tells her, eight factors of blood coagulation begin to run out of goods before festival, do not clearly get for any time.
Not daring to rest, Ms Zhang gets to and lies in the sea route of Gansu Province and love in the way crossing of the cultural palace to grow the pharmacy by bike, the result remains disappointed. Sales assistant say domestic the intersection of blood coagulation and eight the intersection of factor and every two three can reach one inferior goods month now, and one just No. 20 Branch, enough for, buy by odd people at all. Ms Zhang has left one's own contact details. At the intersection of pharmacy and minute book, will it be 10, have 3 the intersection of people and the intersection of person who register and medicine in front of the Ms Zhang only.
To eight factors of blood coagulation which the blood friend patient sell, the department of public health of the province has only appointed province pharmaceuticals and love to grow two places of pharmacy.
But there are no medicines in these two places, Ms Zhang is so anxious as to seize one's own hair continuously. Before this, she has already consulted province the People's Hospital and Zheng Da by phone and enclosed the institute, has had no result. Three months ago, an only hemophilia boy's unexpected massive haemorrhage a and a half year old in Pingyu, because when being less than " Eight factors " ,Leave this world.
Since July of 2007, sad news is coming constantly, because everybody can not buy medicines.
This words are very dreary
Know obviously and save someone's life medicines but can not buy
A hemophilia patient's mother Feng HongMei says: "The most miserable thing in the world, know obviously to save someone's life but medicine can not be bought, then wait for death. "
In the face of the anxious blood friend patient, general manager of province pharmaceuticals Huang WenLi says: "We have been in the positive connection all the time, however, it is very difficult. Only require us to supply at fixed location in the province, but not defined the source of goods is guaranteed. The supply of eight factors, can only satisfy the patient, 40% of the blood friends of our province at most at present. It is reported, our country has patients of 100,000 blood friends at present, but according to the population proportion in Henan, there should be 4000 to 5000 blood friend patients. "
Huang WenLi says, the country forbids importing blood products at present, and domestic only 3 companies can produce eight factors: The intersection of China and blue bio-engineering corporation, the intersection of blood product and Company and green the intersection of cross and the intersection of biologicals and the intersection of medicine company and Company of Anhui, person of fields lying fallow in rotation, of Shanghai of Xinxiang.
And since the second half of 2004, in consideration of security of public health, the country begins to restructure the blood-collecting station, and carry on the blood plasma and stand and reform system. At rectification, it have the whole country by 300 more than blood plasma station,and after quantity invite to half only.
Produce Mr. Wang that eight factor companies work in one to think, blood plasma raw materials are insufficient, it is the main reason why eight factors of blood coagulation are in short supply at present, though Ministry of Public Health restructures the original intention of the market of blood is good, but the way to make it rigidly uniform is too careless.
In addition, yellow gentle gift thinks, the country should encourage donating blood with compensation. In the past, donating blood with compensation is demoted and is called " sell the blood " ,But actually, accord with fixed paid blood donating, likewise make contribution for the society.
|
0 comments:
Post a Comment