" melt frozenner and frozenner heart " The public welfare project is started Guan Ai " freezes people gradually "

" melt frozenner and frozenner heart " The public welfare project is started Guan Ai " freezes people gradually "
Will it be December 15 2009, China cure SCTE announce " melt frozen heart more and more " Turn to project cooperation for help to start in public service. The purpose of this project lies in helping ALS patient to go out of and treat the predicament, establish the idea which adheres to scientific treatment. China cures Yin Dakui, president of SCTE, Ministry of Public Health cures relevant department leaders such as the folk undertaking administration bureaus of policy department, Personnel Department, Ministry of Civil Affairs,etc., expert of department of nerve internal medicine of hospital of domestic nearly 30 of the first, second and third, more than 30 is resident news media representative in Beijing, comparable to promise Ann Wan Philippines of specially on behalf of, if you can't freeze by people's patient representative,etc., attend gradually by activity.
China cures Yin Dakui, president of SCTE, to propose in the report of " new journey of new starting point ", China will set up ALS disease to manage the standardized system if China cures the SCTE, establish the board of trustee of the project. Concentrate strength of the experts and scholars at all levels of various circles of society, seek to help the way to combine together under the China's actual conditions through government's policy support, non-governmental organizational management, domestic and international charitable public interest organization, the sustainable succour security mechanism of the neuronal disease of moving to our country is explored.
ALS (the side of amyotrophy is asked for and hardened) ,Namely the neuronal disease of sport, it is a kind of fatal neuropathy and sex change disease. Because the ill rate is low, there is less social knowledge of this disease. Usually this kind of patient calls " Freeze people gradually " . A ALS patient is seized the life every 90 minutes in the whole world. This disease is classified as one of five major hopeless case by World Health Organization, still indeterminate because of the cause of disease of this disease, also without effective curing the method, in addition patient's life is relatively hidden, though the patient needs others' help very much, but their condition and life is not known by the ordinary person for a long time. They weak tendency most and have one group of the sound most, they need to care about and support even more.
" melt frozenner and frozenner heart " The social public activity has already lasted 5 years from June of 2005 to the present, the ones that are cured the SCTE by China and initiated are by the association, hospital, doctor, patient, social volunteer, the intersection of love and enterprise participate in for help 200,000 China take exercises neuronal the intersection of disease and a public service of patient succour the undertaking jointly. President Yin's height praises Philippines - noble character which Ann Wan specially demonstrates of enterprise's match promise in supporting the activity of ALS patient of the love, have fully reflected enterprises care about the patient's commitment.
Though the morbidity of the neuronal disease of sports is not high, the disaster that this kind of disease brings to patient and relative relatives and friends is enormous. Because Chinese ALS patient's total number is relatively limited at present, have not given enough attention to this kind of patient. Because disease develops process fast, it is relatively high to treat the expenses, patient's body and mind is very painful, disease makes every nerve cell of patient's body die gradually, but their brain is clear in thinking, be moving towards the death progressively by oneself soon in other words. ALS patient needs to use medicines to treat for a long time, brings it to patient and his relative with the enormous pressure in the heart in economy, the ones that cause them to be difficult and bear to ALS patient are treated for a long time. Can establish the scientific treatment view in order to encourage the patient, believe science, cooperate with authoritative hospital and the expert's treatment actively, help the patient to set up good confidence, keep the good psychology, do dogged struggle with the serious illness, insist that lives on bravely, is comparable to promise Philippines - Ann Wan being specially regarded as the leader with pluralistic global medical treatment and health care, fulfil community responsibility actively, and cooperate with China to cure the SCTE and put into and freeze people to turn to for help in the project gradually, offer therapeutic medicine and research fund valued more than 4 million yuan, in order to help the difficult ALS patient, help those to insist science treats the patient of disease at the same time, lighten the burden for the patient's life.
Leader of Ministry of Public Health, civil administration leader show one after another the relevant department of the government will support and care about the public service that freezes people gradually actively, and call upon the whole society to make joint efforts and devote the love for our freezing people's ward mate gradually.
Chinese Medical Association's neuropathy credit is known to General Board, Professor Cui LiYing and the third hospital president Fan DongSheng in Peking University of BJ Union Hospital appeal for ALS disease treatment to need the standardization, set up the China ALS centre in standard of passing through according to world. A great deal of unstandard therapeutic method exists at present, such as unripe stem cell transplanting, folk prescription,etc.. These unstandard treatments have reduced ALS patient's existence time, the general patient dies within the next 3-5 years for the first visit, but survive for more than 10 years. Clinical research verifies, find and diagnose early, and get the scientific treatment, lengthen the most effective method of patient's life at present, can raise 50% survival rate. "
Domestic famous neural the intersection of sport and yuans of expert think if strength generally acknowledge, have certain treatment means of curative effect while being only in the world up until now too unanimously, also it is FDA that sanction, use for, treat nerve, take exercises yuans of the intersection of orphan and medicine of disease while being only. A lot of countries in the world have already listed in the medical insurance and treated the range. The experts call upon, health authorities and the social medical insurance department consider setting up ALS and treating the mode, let the patient of the rare disease enjoy the welfare of medical insurance.
Hope to promote the people of the whole society to pay close attention to caring about " freeze people gradually " together through the efforts of the whole society This disadvantaged groups, different fields such as quality,etc. get great improvement to help this disease colony to seek medical advice, treat, attend to, communicate and live in psychological consultation, the society effectively finally. Let the whole society pay close attention to " Freeze people gradually " This special colony, let more people understand that freeze people gradually. When the slight love assembles, the world will change, hopes to light the hope of the life with your love, melt frozenner and frozenner heart.
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